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Sva djeca s Downovim sindromom prolaze kroz jednake razvojne etape kao i djeca „urednog razvoja“, samo je njihov ulazak u pojedinu etapu nešto sporiji i kasniji, a „ostanak“ na pojedinoj etapi razvoja nešto dulji.

1

Djeca se rađaju sa 100 do 200 bilijuna stanica u mozgu.

1

Učestalost  cerebralne paralize se gotovo ne mijenja od devedesetih godina, a broj djece s različitim teškoćama učenja se povećava.

1

Oko 10% novorođene djece odnosi se na neurorizičnu skupinu djece (Hrvatski registar osoba s invaliditetom).

1

Pravovremeni terapijski postupci su učinkovitiji i isplativiji, negoli terapijski postupci koji se poduzimaju u školskoj dobi - u trenutku kad se teškoće nagomilaju.

1

Novorođenče je 3/4 svoje budnosti usmjereno na majčino lice.

1

Od skupine djece koja dolaze na stručnu procjenu u dobi od tri i pol godine, čak polovica njih (44%) još ne govori.

1

Na području Hrvatske roditelji sve ranije uočavaju teškoće u razvoju djeteta (u prosjeku oko 30 mjeseci), ali tek potom slijedi potraga za stručnom pomoći koja postaje višemjesečna ili višegodišnja.

1

Uporaba geste kod djece koja kasne u jezično-govornome razvoju potiče i motivira 'progovaranje'.

1

Prema iskustvima naših roditelja prvi razgovor s liječnikom o djetetovoj dijagnozi obično traje između jedne i dvije minute.

1

Razvoj portala omogućili su:

Unicef

CNFCEE

Zagrebačka županija

Pliva

Egmont

Lima O.I.

Metropola.hr

Metropola.hr

hep.hr

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European Declaration on Health of Children and Young People with Intellectual Disabilities and their Families | Ispis |  E-mail
A "European Declaration on Health of Children and Young People with Intellectual Disabilities and their Families" was recently signed by the Regional Directors of WHO and UNICEF and the Minister of Health of Romania on behalf of 53 Ministers of Health of the WHO European region. The declaration provides a comprehensive basis for stronger engagement of Governments, and Ministries of Health in particular, in child care reforms and further promotion of deinstitutionalization. The WHO Regional Director committed to put the declaration on the agenda of the WHO Regional Committee in September 2011 which will give even a stronger basis for follow-up and monitoring progress. We have also discussed the possibility of following-up with a joint letter signed by WHO and UNICEF which would be sent to governments in the region highlighting the importance of the Declaration and encouraging the development of results-based national plans.
Key messages coming out from the conference are:
- while there was some progress on deinstitutionilization and creating community based services, children with disabilities are often the last ones to benefit and overall number of children in formal care is growing.
- fighting up-front stigma and discrimination is an essential pre-requisite for successful reforms and social integration of children with intellectual disabilities.
- the health system capacity to address intellectual disability is limited and requires major investments in human resources, developing modern early identification and early intervention services, providing adequate care and referral when needed, and ensuring access to appropriate services in the community. A comprehensive system approach is required in order to achieve continuity and integration of care.
A plan of action was developed in support of the implementation of the declaration. You could find more information on the conference at the following link.
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